For the first time, a newly-released report, resulting from a one-day summit, “Paving the Path for Family-Centered Design: A National Report on Family Caregiver Roles in Medical Product Development,” explores the vital roles that family caregivers can play in shaping biomedical research and development, regulatory decision-making and healthcare delivery. Specifically, the report begins a dialogue on how to incorporate the critical knowledge of caregivers in developing pharmaceutical products, biotechnology therapies, and medical devices. It presents recommendations for leveraging the enormous – and largely untapped – a reservoir of information and observations of caregivers about the conditions their care.... Read More
Spotlighting aging and caregiving in diverse communities at the 2019 Aging in America Conference
Last week, I traveled to New Orleans for the 2019 Aging in America Conference, hosted by the American Society on Aging (ASA). This annual event brings together thousands of people working in the aging field for a week of workshops, film screenings, events and receptions. It’s a great opportunity for the Diverse Elders Coalition to connect with partners who are normally scattered across the globe but find themselves in the same room for this one week every year!
According to the American Society on Aging, the conference will have “a strong focus on critical and emergent topics facing the field of aging, as well as cutting-edge and responsive programmatic, research, policy and advocacy efforts.” Topics will include social isolation, emergency and disaster readiness, housing.... Read More
Come see “Toilet Talks,” a play about eldercare, in Indianapolis next week!
In November of 2017, we met Betty (she/her/hers) and liz thomson (they/them/theirs) through the interview on November 20, 2017. They had just moved in together that fall and were adjusting to their new apartment in Greenwood, Indiana. Liz, who is an adoptee and identifies as bi/queer and gender non-conforming, interviewed Mom to get her thoughts on how the new situation was going. In September of 2018, Mom passed away and left liz with the logistics that follow a death, but also a deeply unexpected void in their life. Trying to cope in a healthy way, liz wrote Toilet Talks, a semi-fictional play about their elder care experience. Toilet Talks will be a.... Read More
Let’s Talk Aging, Caregiving and Cultural Competence at This Year’s Aging in America Conference
It’s April, which means that the American Society on Aging’s 2019 Aging in America Conference (AiA19) is right around the corner! The Diverse Elders Coalition and our five member organizations will be on the ground in New Orleans from April 15th through the 18th, talking about issues of aging, caregiving, and cultural competence in our communities. Will we see you there?
For conference attendees, you can find a full list of the panels, workshops, film screenings, and events that the Diverse Elders Coalition and its members will be a part of at AiA19 by clicking on.... Read More
What happens when the heroes of Stonewall descend on Capitol Hill?
Fifty years ago this June, the global movement for LGBTQ rights was born at New York City’s Stonewall Inn, and the people who started that movement — first a riot, then a revolution — are responsible for the access that lesbian, gay, bisexual, transgender, and queer people have today. Many of those heroes are still among us, and on Wednesday, March 13th, SAGE brought a busload of activists, allies, and the heroes themselves down to Washington, D.C. for a national day of advocacy. More than 100 people spent the day on Capitol Hill, meeting their Members of Congress and urging support for policies that would improve the lives of LGBT elders.
by Kerry Hannon. This article originally appeared on Next Avenue.
I recently attended a Milken Institute Future of Health Summit panel in Washington, D.C. called Race, Gender, and Work: The Economics of Healthy Aging. The experts’ insights whizzed across a range of topics from caregiving to investing and jobs, but there was one common thread: the critical financial issues facing women. I was especially struck by the particular challenges they noted for women of color and low-income women.
“Whether you look at women through the lens of their labor force participation, pay equity, health participation or financial security, women are challenged to live the lives that are healthy, wealthy and secure, and to.... Read More
Harnessing the Power of Narrative for Positive Change: SEARAC’s Leadership and Advocacy Training
by Alyssa Tulabut, Training Manager, Southeast Asia Resource Action Center (SEARAC).
Stories have been described as “the single most powerful weapon in a leader’s arsenal.” Social psychologist Jonathan Haidt wrote, “The human mind is a story processor, not a logic processor.” These sentiments particularly seem to resonate under an administration that weaves tall tales and spreads misinformation tweet after tweet. Stories have the power to make people feel, and unfortunately for advocates of immigrant and refugee communities, the narratives being circulated have been carefully crafted to stoke fear and to label some communities as untrustworthy “others.” As we’ve witnessed over the.... Read More
National Hispanic Council on Aging to Host Tele Town Hall on Caregiving
Providing assistance for older generations is a source of great cultural pride within Hispanic communities, and what motivates Hispanics to become caregivers to their older adults is familiarismo, their cultural values that are passed on from generation to generation. However, more than 40% of these caregivers reported feeling stressed and even overwhelmed by the caregiving responsibility.
More than 9 million Latinos, 21% of the estimated 40 million family caregivers in the U.S., are caring for a family member without receiving any type of compensation.
Their average income is $39,000 per year, well below the national average of $54,700. This represents a challenge when.... Read More
Why we care about visits to Capitol Hill (and you should too)
When our partners travel to the nation’s capital, the National Council on Aging (NCOA) Public Policy and Advocacy team strongly encourage them to schedule Hill visits.
We often get questions about why these office visits are so important and how they work. In advance of our 2019 Age+Action Conference, which will feature a Hill Day, we’re planning a series of educational webinars to discuss Hill visits and to help make your visit successful.
Register now for our webinar! Thursday,.... Read More
by Aspen Christian. This article originally appeared on the SAGE blog.
Fifty years ago this coming June, LGBT elder pioneers started the fight for LGBT equality at the Stonewall Inn in New York City. As the nation nears the 50th anniversary of this watershed moment for the LGBT movement, SAGE and LGBT elders from across the country will gather in D.C. for SAGE’s first-ever National Day of Advocacy on March 13, 2019.
The Day of Advocacy will be held in conjunction with the annual SAGENet meeting, where SAGE affiliates gather to share ideas, participate in training sessions, and sharpen their advocacy skills. SAGENet affiliate leaders, SAGE.... Read More
New Group Aims To Address Isolation Among LGBTQ Older Adults
by Lisa Gillespie. This story was originally broadcast on 89.3 WFPL.
New preliminary survey research from the University of Kentucky shows that many older LGBTQ adults feel isolated and aren’t tapped into senior services. And that research is shaping programming of a new group geared toward these adults out of Lexington and Louisville.
UK researcher Aaron Guest recently surveyed around 700 LGBTQ adults over age 50 in the state. He asked them about issues related to health care, long-term care and other issues that could impact the lifespan of these adults.
“There may not be many family units to provide care, or friendship networks may have shrunk, so there’s not individuals to step into the caregiver status,”.... Read More