“I have been forgetting things for years, but now I forget in a new way. I used to believe I could eventually retrieve whatever was lost and then commit it to memory. Now I know I can’t possibly. Whatever’s gone is hopelessly gone. And what’s new doesn’t stick.”
This passage is just one of many favorites from Nora Ephron’s final book, I Remember Nothing — a 161-page testament to the fact that as we age, our memories get.... Read More
I am proud and honored to announce that I have been invited by Governor Newsom and former California First Lady Maria Shriver to join the Governor’s Alzheimer’s Prevention and Preparedness Task Force. The Task Force consists of 29 members. It is a diverse group of formal and informal experts— caregivers, health service providers, researchers, policy experts, advocates, affected families and media professionals. The Task Force is charged with developing a plan that will work for all Californians living with Alzheimer’s and for the people who care for them.
For the last seven years, I have had the opportunity to advocate for, and.... Read More
Culturally Competent Supports for Diverse Family Caregivers: Spotlight on Volunteers of America Minnesota-Wisconsin
Nearly one in four older adults dually eligible for Medicare and Medicaid has Alzheimer’s disease or related dementia, and dually eligible older adults have higher rates of chronic conditions than Medicare-only beneficiaries. Caring for individuals with dementia and other chronic conditions often involves significant physical, emotional, and financial support from family members. To meet the needs of family caregivers, providers and health plans may benefit from strategies for supporting caregivers through services such as respite services, counseling, and training and education.
Family caregivers come from diverse cultural and linguistic backgrounds, and health plans report.... Read More
Recording Available for Health Disparities Webinar with the All of Us Research Program
In case you missed our webinar on health research and health disparities with the All of Us Research Program, a recording of this webinar is now available here. Just enter your name and email address and you will be able to watch the full presentation at any time!
This webinar was rich, informative, and inspiring. Thank you to our co-presenters:
Joan and Lucy are members of an increasing population of older adults in their 70s and 80s who will need some type of assistance to support them to age in place. Joan is a retired teacher and her partner Lucy is a retired social worker.
Joan told me, “We always planned on traveling after retirement. There are so many places we haven’t been, and we wanted to visit all of them. But then Lucy developed Alzheimer’s, and everything changed. We took some great trips at the beginning of the disease. We enjoyed every minute of our time together. It.... Read More
Vietnamese immigrants care for parents with dementia, amidst stigma
It was August 24, 2017, one day before Hurricane Harvey, a category 4 hurricane, hit Houston and dumped more water than any storm ever recorded in United States history. In just a few days, Houston saw as much rain as it usually saw in a year. My brother picked up our dad, who was 82, at his house, where he lived alone, and they evacuated to higher ground. They rode out the storm in the countryside. My brother’s in-laws had gotten 10 pounds of ground beef and made enough chili to last through the storm. This is.... Read More
Alzheimer’s & Brain Awareness Month Highlight on Asian American Pacific Islanders
Alzheimer’s disease is a public health issue that impacts many. In the United States, 5.8 million people live with Alzheimer’s, while over 16 million family members and friends serve as their unpaid caregivers.
In light of June being Alzheimer’s & Brain Awareness Month, the National Asian Pacific Center on Aging (NAPCA) is taking the time to reflect on how Alzheimer’s and other forms of dementia uniquely impacts the aging Asian American and Pacific Islander (AAPI) community. Working closely with older adults through our programs, we feel the importance of these issues more with each day. After all, one of the greatest known risk factors for Alzheimer’s is age.
For example, African Americans and Latinos face a higher risk for some of our country’s most common health problems, including obesity, heart disease, diabetes, hypertension, high blood pressure, stroke, Alzheimer’s and other dementias.
To understand and address these disparities, greater attention must be paid to the role of.... Read More
Group sessions in St. Louis offer hope and help to African Americans at risk of cognitive decline
We wish to introduce the Diverse Elders Coalition to our “Senior Social Group For Brain Health As We Age!” Founded and led by Dr. Whitney Postman, Ph.D./CCC-SLP, Assistant Professor and Director of the Neuro-Rehabilitation of Language Laboratory at Saint Louis University’s Department of Communication Sciences and Disorders, this group was forged as a community partnership between Saint Louis University’s Geriatric Workforce Enhancement Program, Northside Senior Center, and CareSTL Health, a Federally Qualified Health Center serving predominantly African American and economically disadvantaged residents of North St. Louis. Our aim is to reduce health.... Read More
African Americans Face Greater Risk of Alzheimer’s Disease Than Whites
by Rodney Brooks. This article originally appeared in USA TODAY.
A decade ago, Rushern Baker III started seeing signs that something was wrong with his wife when she was still in her late 40s. Christa Beverly was forgetting things and losing things. Then, she was hopelessly lost only blocks from her parents’ home.
It took some doing, but he convinced her to see a doctor. She was tested, and at age 49 was diagnosed with early-onset Alzheimer’s. At the time, Baker was preparing to run for county executive in Prince Georges County, Md., which borders Washington, D.C., an election he won in 2010.
Within a few years of the diagnosis, Christa had lost most of her functions. Today, at age 58,.... Read More
Stigma around Alzheimer’s disease, the sixth-leading cause of death among Americans, is slowly eroding as the disease becomes more and more visible in our communities and in popular culture. Films such as “Still Alice” and Pixar’s “Coco” are helping the general public to learn about and have conversations about dementia.
Open discussions of their personal diagnoses from high-profile figures like former Supreme Court Justice Sandra Day O’Connor, musician Glen Campbell and restaurateur B. Smith are putting a public face on the progressive brain disease. While awareness is increasing, there are still aspects of Alzheimer’s and its impacts on society that are largely.... Read More
New Report Identifies Unique Challenges for LGBT Community Facing Alzheimer’s and Other Dementias
LGBT and Dementia – a new issues brief developed by the Alzheimer’s Association and SAGE outlines the unique challenges facing LGBT older adults living with Alzheimer’s and other dementias and their caregivers. The brief outlines the unique issues that arise when Alzheimer’s disease, sexual orientation, and gender identification and expression intersect, allowing advocates and care providers to better meet the needs of LGBT elders and their caregivers facing dementia.
“Living with Alzheimer’s or another dementia is not easy for anyone,” said Sam Fazio, Ph.D., director of quality care and psychosocial research, Alzheimer’s Association. “But LGBT individuals can often face additional challenges that need to be considered and addressed to ensure this population.... Read More