Our country has reached a critical moment. The aging of the baby boom generation and the fact that people are living longer is driving tremendous growth in the numbers of older adults. By 2030, one in five Americans will be age 65 or older. And statistics show that 90 percent of this population will want to age at home and in their communities.
To achieve this goal, older adults will likely need access to local services and supports — and their caregivers will need assistance, too. Providing those services is what members of the National Association.... Read More
“About 40 million family caregivers provide about $470 billion annually in unpaid care to their loved ones”
NHCOA forwards the following recommendations to better support Hispanic/Latino older adults by ensuring adequate training and care for their caregivers, and would like to urge and encourage members of Congress to support these important pieces of legislation that impacts their older Hispanic constituency:
Bipartisan passage of R.947 and S.337, the Family and Medical Insurance Leave Act (the FAMILY Act). Bipartisan passage of S 1028, the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act.
The partnership will develop a network of health promoters to deliver Alzheimer’s education in Latino communities, while connecting people living with the disease and their caregivers to free resources and support services offered through the Alzheimer’s Association. The health promoters will help bridge cultural and linguistic barriers.... Read More
Latinos & Alzheimer’s: Empowering Communities Through Culture
The names of friends and family members become harder to remember. You might forget how to tie your shoes or have difficulty dressing in the morning. You might find yourself lost in places that you have known your entire life or be confused by what day of the week it is. These are some of the early signs of Alzheimer’s, a progressive brain disease impacting millions of Americans — and hitting women and communities of color especially hard.
In fact, Latinos are 1.5 times more likely to develop Alzheimer’s or a related dementia than non-Latino whites, and a report from LatinosAgainstAlzheimer’s and the USC Roybal Institute on Aging projects the number of Latinos living with.... Read More
Breaking stigmas, creating awareness, and increasing age-sensitive education are three key elements to improve the lives Alzheimer’s patients and their caregivers
The National Hispanic Council on Aging (NHCOA) continues its work by looking for strategies that amplify the voices of thousands of families facing Alzheimer’s and other types of dementia, so their specific needs can be included in the decision-making process across public health.
Latinos face a higher risk of Alzheimer’s disease and other dementias because they are not only living longer (2.5 years longer than whites and 8 years longer than blacks), but they also face severe health disparities, including high levels of hunger, higher rates of type 2 diabetes incidence and complication rates, and lack of access to health insurance.
The 2017 Aspen Summit on Inequality & Opportunity brought together a diverse mix of policymakers, thought leaders, social entrepreneurs, philanthropists, and practitioners to address the nation’s widening opportunity gap. Tucked between to-be-expected panels on manufacturing and hunger, was a 15 minute talk by Dr. Sarah Enos Watamura, Associate Professor of Psychology at the University of Denver and Director of the Child Health & Development Lab, on the biology of adversity. She opened by posing the question: How could a consideration of biology inform policy and practice solutions for moving families from inequality to opportunity?
African Americans experiencing health disparities is not new. In fact, according to former Surgeon General of the United States and Honorary Chair of the African American Network Against Alzheimer’s, Dr. David Satcher, race based health disparities in the United States are both “pervasive and persistent,”.... Read More
Every 66 seconds, someone in the United States develops Alzheimer’s disease; every minute, a family is changed forever. In the coming decades, the number of Latino families impacted by this progressive brain disease will grow dramatically due to an increase in the Latino older adult population and higher rates of of diabetes and heart disease, both risk factors for Alzheimer’s and other dementias.
by William Vega and Daisy Duarte. William is a Provost Professor and Director, USC Edward R. Roybal Institute on Aging at the USC Suzanne Dworak-Peck School of Social Work. Daisy is an advocate for the LatinosAgainstAlzheimer’s Network and an Alzheimer’s caregiver.
NYU clinical professor Yvonne Latty never expected the hardships faced as a caregiver for her mother living with Alzheimer’s. From the 24/7 care to the rising medical bills, the experience has been overwhelming. Her attempts to access a diagnosis and treatment for her mother in the Bronx left her angry, frustrated and confused. A doctor smugly suggested Yvonne “Google” her mother’s condition and devise a plan for her with the help of URLs.
As Alzheimer’s and brain awareness month comes to a close, I want to highlight two powerful stories that underscore trends that deserve greater attention: the growing impact of Alzheimer’s on communities of color and the growth of the millennial caregiver.
UsAgainstAlzheimer’s recently partnered with Genius of Caring, a web-based initiative that documents the growing impact of Alzheimer’s and dementia on families, to present the story of Kamaria Moore, 30, and her mother Mary, who was diagnosed with Alzheimer’s at the age of 58. Kamaria is a new homeowner, recently engaged, and solely responsible for her mother’s intensive care.
Kamaria’s experience highlights the growing impact of dementia on African Americans, a community three times more.... Read More
One Advocate’s Journey: Fighting Alzheimer’s Through Awareness and Research
As the director of the LatinosAgainstAlzheimer’s Coalition, I’m thrilled when we can work hand-in-hand with our members to raise awareness of dementia and Alzheimer’s among their constituents, staff, and partners. That’s why I’m pleased to share our most recent collaboration with the League of United Latin American Citizens (LULAC), the nation’s oldest civil rights volunteer-based organization.
LULAC News – the organization’s membership magazine – sat down with LatinosAgainstAlzheimer’s advocate Daisy Duarte to learn more about Alzheimer’s impact on Latinos and about her role as a caregiver advocate and a clinical trial participant.
Daisy Duarte is one of my personal heroes. She’s not a member of congress, a policy wonk, or a world-renowned research scientist, but she’s disrupting the way we think about Alzheimer’s on the Hill, in research labs, and in communities across the country. Daisy is a proud Latina, a full-time caregiver for her mother with Alzheimer’s, and a clinical trial participant. And as the number of Latinos with Alzheimer’s is projected to grow dramatically over the next 30 years, she’s exactly the kind of voice we need in the fight against Alzheimer’s today.
From her difficulty getting a timely and accurate diagnosis to her costly emergency room visit, Daisy’s story is typical of many Latino families struggling with Alzheimer’s..... Read More