For the First Time, National Report Examines Potential Role of Caregivers in Medical Product Development

For the first time, a newly-released report, resulting from a one-day summit, “Paving the Path for Family-Centered Design: A National Report on Family Caregiver Roles in Medical Product Development,” explores the vital roles that family caregivers can play in shaping biomedical research and development, regulatory decision-making and healthcare delivery. Specifically, the report begins a dialogue on how to incorporate the critical knowledge of caregivers in developing pharmaceutical products, biotechnology therapies, and medical devices. It presents recommendations for leveraging the enormous – and largely untapped – a reservoir of information and observations of caregivers about the conditions their care.... Read More

             

States Need Pragmatic Policy Solutions to Better Support Family Caregivers

by Rani Snyder, Program Director, The John A. Hartford Foundation. This blog originally appeared on The John A. Hartford Foundation website.

Dear Colleagues—

At JAHF we want to know how we can better support family caregivers—the nearly 18 million family members in the United States who provide care to older people who need assistance. They are often invisible members of our health care system who receive little preparation, training, or support. They make it possible for older adults to live in their homes, rather than an institutional setting, for as long as possible—which is what 87%.... Read More

             

Are you caring for an older adult? Take our new survey and let your voice be heard!

If you’re caring for an aging parent, spouse, partner, grandparent, relative, friend, or neighbor, we want to hear from you!

The Diverse Elders Coalition is currently surveying caregivers from our communities to learn more about the diverse experiences of family caregivers for older adults. We want to hear about your experiences so that we can create tools to better support caregivers like you.

The survey is currently available in English, Spanish, and Vietnamese. We will soon have additional languages available, including Chinese, Khmer, Korean, Hmong, and Lao.

Visit www.diverseelders.org/survey to get started. The.... Read More

             

Inadequate Data on Missing, Murdered Indigenous Women and Girls

by Kayla Sawyer. This article originally appeared on the NICOA blog.

TRIGGER WARNING: If reading this post triggers past traumas, please see the resources listed at the end of this article for assistance.

There is a serious lack of meaningful government data documenting rates of missing and murdered indigenous women and girls. A recent study by the Urban Indian Health Institute (UIHI) revealed that only 116 of the 5,712 cases of murdered or missing Native women were logged into the Department of Justice’s nationwide database.

U.S. attorneys’ offices declined to proceed with.... Read More

             

Precision Medicine Rejects “One-Size-Fits-All” Medicine and Creates Health Solutions that Meet the Needs of Diverse Elders

Clinical trials and health research are invaluable tools to advance individual and public health around the world, but the communities represented by the Diverse Elders Coalition – including American Indians and Alaska Natives, Asian Americans and Pacific Islanders, Hispanics and Latinos, and Lesbian, Gay, Bisexual, and/or Transgender (LGBT) people – are often underrepresented in these initiatives. In fact, because of a lack of comprehensive, disaggregated data collection, participants may not be able to indicate their sexual orientation or gender identity, and no distinction may be made between South Indians,.... Read More

             

To Eliminate Race Disparities in Diabetes, We Must Address Social Determinants of Health

by Susan Buchanan. This article originally appeared in the Louisiana Weekly.

In the United States, diabetes is most prevalent among Southerners and residents of Appalachian regions. Blacks are afflicted more than whites. Over a third of African American seniors are diagnosed as diabetic.

The prevalence of diabetes increases with age, Kelly Zimmerman, spokeswoman for Louisiana’s Department of Health, said last week. Adults ages 65 and older had the highest rate in the state last year at 26.1 percent. Diabetes among all of Louisiana’s adults 18 years and above was 13.6 percent. For the state’s African American adults of.... Read More

             

Thought Leaders Reframe the Discussion Around Aging at NYC Roundtable

“Aging should not take away our identity.”

This reflection was just one of the many ideas that came out of the 3rd edition of the Reframing Aging Thought Leaders Roundtable, organized by the National Hispanic Council on Aging (NHCOA) held in New York City on October 19, 2018. A group of 27 experts in the field of aging gathered once again to address the misconceptions around getting “older”. This meeting was a continuation of conversations that began at roundtables in Washington, DC and Albuquerque, NM.

Anna Maria Chavez, Executive Vice President of.... Read More

             

Conquering Health Disparities Facing Older Hispanics

For far too many years, Hispanics across the country have been sidelined in critical medical research. As a result, our community is not taken into consideration in the creation of medical treatment programs that, for some, would be their best chance for survival. For a community that already faces a lower life expectancy, higher rates of diabetes and other critical health disparities when compared to their white peers, this reality is simply unacceptable.

Even worse is the lack of precise medical treatments for older Hispanic populations. As some of the most vulnerable members of our society, these individuals deserve equal access to treatment.... Read More

             
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