An event hosted by the Southeast Asia Resource Action Center (SEARAC) is always sure to be filled with thoughtful, inspirational, and powerful moments, but none as powerful as the Diverse Elders Coalition’s family caregiving presentation at this year’s Moving Mountains Equity Summit in Sacramento, CA. I was thrilled to be able to share some of the preliminary findings of our family caregiving research, which has been generously supported by The John A. Hartford Foundation. After months of collecting surveys and conducting focus groups, it was exciting and satisfying to be able to share the results of our work with an audience of people most impacted by the programs and policies that will.... Read More
The Service Partnering With Churches to Help Family Caregivers
by Melba Newsome. This article originally appeared on Next Avenue.
When Altrice Ward’s 82-year-old mother was hospitalized after falling for the third or fourth time, Ward knew she had to face an uncomfortable reality: Her mother could no longer live on her own.
So, despite holding down a full-time nursing job, Ward decided to move her mother in with her and take on the role of caregiver. Even her professional training caring for others did not prepare her for what lay ahead.
“It was eye-opening and more difficult and exhausting than I imagined it.... Read More
Celebrating Hispanic Heritage Month and the diversity of cultures that make our country great
At a time when Latinx citizens and immigrants are targeted because of their language and culture, the Diverse Elders Coalition rejects harmful, discriminatory policies and practices. Instead, we join our member organization the National Hispanic Council on Aging (NHCOA) in celebrating National Hispanic Heritage Month and the many contributions that Hispanic older adults bring to our communities and our country. Read on for Hispanic Heritage Month highlights from the coalition and beyond.
by Christine S. Perez, Program and Resource Development Associate, NHCOA
Next week, the National Hispanic Council on Aging (NHCOA) will be hosting two events in Washington, D.C. and Silver Spring, M.D. to celebrate Hispanic Heritage and support Hispanic older adults nationwide. We hope you will join us at one or both of these important events!
The National Hispanic Council on Aging (NHCOA) invites you to join us at the Rayburn House Office Building on Tuesday, September 17th at 9:30am EDT to release our “2019 Status of Hispanic Older Adults: Recommendations from the.... Read More
I am proud and honored to announce that I have been invited by Governor Newsom and former California First Lady Maria Shriver to join the Governor’s Alzheimer’s Prevention and Preparedness Task Force. The Task Force consists of 29 members. It is a diverse group of formal and informal experts— caregivers, health service providers, researchers, policy experts, advocates, affected families and media professionals. The Task Force is charged with developing a plan that will work for all Californians living with Alzheimer’s and for the people who care for them.
For the last seven years, I have had the opportunity to advocate for, and.... Read More
Fighting loneliness and isolation with The Harmony Exchange
Older adults suffering from social isolation and loneliness are at a higher risk of developing physical and mental health conditions, including high blood pressure, heart disease, and Alzheimer’s disease. According to a 2016 study published in Gerontology, up to 29 percent of American adults aged over 70 years report being lonely. Although often overlooked, loneliness is a real and growing epidemic that affects the overall health of older individuals. This is an especially prominent issue for older adults that are either homebound or have decreased mobility, as the only people they may see on a regular basis are home aides or family.
The Harmony Exchange was created to combat exactly this.
Nearly one in four older adults dually eligible for Medicare and Medicaid has Alzheimer’s disease or related dementia, and dually eligible older adults have higher rates of chronic conditions than Medicare-only beneficiaries. Caring for individuals with dementia and other chronic conditions often involves significant physical, emotional, and financial support from family members. To meet the needs of family caregivers, providers and health plans may benefit from strategies for supporting caregivers through services such as respite services, counseling, and training and education.
Family caregivers come from diverse cultural and linguistic backgrounds, and health plans report.... Read More
Five Wishes: Advance Care Planning for Diverse Communities
This article was written for the Diverse Elders Coalition by Five Wishes.
Rosa was age 85, a widow, and doing great. She enjoyed good health, many friends and was involved in social activities at her church and in her community. Her children and grandchildren would say, only half-jokingly, that Rosa was healthier and more active than any of them and would likely outlive them all. Even her own doctor was impressed that a woman of her age was as alert and physically able as any patient half her age.
It really never occurred to Rosa or Rosa’s family that it might be smart to plan ahead in case she had an accident or suffered a severe.... Read More
I Attended a Focus Group with Vietnamese Caregivers. Here are Some of the Things I Learned.
Last month, I had the opportunity to attend a focus group with Vietnamese family caregivers in Houston, Texas. During the focus group, I learned more about their caregiving experiences, their challenges, and the changes they would like to see in the U.S. healthcare system. Here are some of the things I learned.
“Very thankful for my parents, but sometimes it can be hard to please them, especially when dealing with right and wrong because of our cultural values.” – focus group participant
Cultural Values Influences Caregiving Expectations
In the Vietnamese community, traditional values have a big impact on caregivers. Traditional values such as filial piety — respect for one’s parents, elders, and ancestors — influence many Vietnamese caregivers to exclusively.... Read More
As Death Approaches, Older Indian Americans Unprepared for the End
The 88-year-old man looked gray and emaciated, the outline of his collarbones clearly visible under the loose fitting gown he wore as he lay in a narrow hospital bed in an East Bay nursing home. His eyes were closed, his mouth agape. A tube delivered both medicine and food directly into his stomach. He didn’t appear to know what was going on around him.
Nearly two years ago, aspiration pneumonia put Chandra Bhatia (his wife asked that his real name not be used) in the hospital. Since then, other health crises have.... Read More