2020 Census Overlooks Caregivers

by Kayla Sawyer. This article originallu appeared on the NICOA blog.

The 2020 Census fails to ask two important questions that affect more than 43.5 million Americans. The missing questions address whether a U.S. resident is a caregiver for an adult family member or a disabled child and whether a resident is receiving care from a family member.

Although the 2020 Census does include questions about grandparents caring for their grandchildren (up to age 18) in their homes, there’s no Census Bureau on family caregivingAccording to estimates.... Read More

             

Moving Mountains for Family Caregivers in Southeast Asian American Communities

An event hosted by the Southeast Asia Resource Action Center (SEARAC) is always sure to be filled with thoughtful, inspirational, and powerful moments, but none as powerful as the Diverse Elders Coalition’s family caregiving presentation at this year’s Moving Mountains Equity Summit in Sacramento, CA. I was thrilled to be able to share some of the preliminary findings of our family caregiving research, which has been generously supported by The John A. Hartford Foundation. After months of collecting surveys and conducting focus groups, it was exciting and satisfying to be able to share the results of our work with an audience of people most impacted by the programs and policies that will.... Read More

             

The Service Partnering With Churches to Help Family Caregivers

by Melba Newsome. This article originally appeared on Next Avenue.

When Altrice Ward’s 82-year-old mother was hospitalized after falling for the third or fourth time, Ward knew she had to face an uncomfortable reality: Her mother could no longer live on her own.

So, despite holding down a full-time nursing job, Ward decided to move her mother in with her and take on the role of caregiver. Even her professional training caring for others did not prepare her for what lay ahead.

“It was eye-opening and more difficult and exhausting than I imagined it would.... Read More

             

Building an Age- and Dementia-Friendly California

By Dr. Marcy Adelman. This article originally appeared in the San Francisco Bay Times.

I am proud and honored to announce that I have been invited by Governor Newsom and former California First Lady Maria Shriver to join the Governor’s Alzheimer’s Prevention and Preparedness Task Force. The Task Force consists of 29 members. It is a diverse group of formal and informal experts— caregivers, health service providers, researchers, policy experts, advocates, affected families and media professionals. The Task Force is charged with developing a plan that will work for all Californians living with Alzheimer’s and for the people who care for them.

For the last seven years, I have had the opportunity to advocate for, and.... Read More

             

Fighting loneliness and isolation with The Harmony Exchange

Older adults suffering from social isolation and loneliness are at a higher risk of developing physical and mental health conditions, including high blood pressure, heart disease, and Alzheimer’s disease. According to a 2016 study published in Gerontology, up to 29 percent of American adults aged over 70 years report being lonely. Although often overlooked, loneliness is a real and growing epidemic that affects the overall health of older individuals. This is an especially prominent issue for older adults that are either homebound or have decreased mobility, as the only people they may see on a regular basis are home aides or family.

The Harmony Exchange was created to combat exactly this.

As.... Read More

             

Culturally Competent Supports for Diverse Family Caregivers: Spotlight on Volunteers of America Minnesota-Wisconsin

This article was written for the Diverse Elders Coalition by Resources for Integrated Care.

Nearly one in four older adults dually eligible for Medicare and Medicaid has Alzheimer’s disease or related dementia, and dually eligible older adults have higher rates of chronic conditions than Medicare-only beneficiaries. Caring for individuals with dementia and other chronic conditions often involves significant physical, emotional, and financial support from family members. To meet the needs of family caregivers, providers and health plans may benefit from strategies for supporting caregivers through services such as respite services, counseling, and training and education.

Family caregivers come from diverse cultural and linguistic backgrounds, and health plans report.... Read More

             

Five Wishes: Advance Care Planning for Diverse Communities

This article was written for the Diverse Elders Coalition by Five Wishes.

Rosa was age 85, a widow, and doing great. She enjoyed good health, many friends and was involved in social activities at her church and in her community. Her children and grandchildren would say, only half-jokingly, that Rosa was healthier and more active than any of them and would likely outlive them all. Even her own doctor was impressed that a woman of her age was as alert and physically able as any patient half her age.

It really never occurred to Rosa or Rosa’s family that it might be smart to plan ahead in case she had an accident or suffered a severe.... Read More

             

I Attended a Focus Group with Vietnamese Caregivers. Here are Some of the Things I Learned.

Last month, I had the opportunity to attend a focus group with Vietnamese family caregivers in Houston, Texas. During the focus group, I learned more about their caregiving experiences, their challenges, and the changes they would like to see in the U.S. healthcare system. Here are some of the things I learned.

“Very thankful for my parents, but sometimes it can be hard to please them, especially when dealing with right and wrong because of our cultural values.” – focus group participant

Cultural Values Influences Caregiving Expectations

In the Vietnamese community, traditional values have a big impact on caregivers. Traditional values such as filial piety — respect for one’s parents, elders, and ancestors — influence many Vietnamese caregivers to exclusively.... Read More

             
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