Caregiving

NICOA Hosts Focus Groups with American Indian Caregivers

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by Kayla Sawyer and Rebecca Owl Morgan

Earlier this year, the National Indian Council on Aging (NICOA) had the opportunity to host several focus groups with American Indian family caregivers in New Mexico. NICOA organized four focus groups with a total of 31 participants. The purpose of the groups was to learn more about these caregivers’ experiences helping an older family member or friend who has health problems and disabilities. During the focus groups, we learned about their caregiving duties, the challenges they face, and their encounters with healthcare professionals.

Our focus groups revealed how caregivers’ lives are impacted by their role as caregivers. Many American Indian caregivers spoke about skipping appointments and neglecting their own.... Read More

             

Sharing our caregiving research and making new connections at GSA 2019

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By Jenna McDavid and Ocean Le

Last week, the Diverse Elders Coalition traveled to Austin, Texas for our first-ever Gerontological Society of America annual scientific meeting. This yearly event brings together researchers, academics, and others in the field of aging to discuss new findings and solutions for improving aging. The Diverse Elders Coalition was excited to participate in this year’s conference for several reasons: we were able to support our friends at the Journalists in Aging fellowship, we shared new research on family caregiving in diverse communities, and we had an exhibitor’s booth from which we disseminated reports, brochures, and other publications from the DEC and its members.

The week began with.... Read More

             

National Family Caregivers Month: Strength and Resilience

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November is a very special month. It marks the month of Thanksgiving, where millions of families and friends across the United States gather to give thanks, show appreciation for one another, and feast. November also marks National Family Caregivers Month, a time to recognize the people taking care of the ones they love. Although National Family Caregivers Month is not as widely celebrated as Thanksgiving, it is just as important for millions of families across the United States. Along with expressing gratitude for family caregivers, National Family Caregivers Month is a time to highlight the issues of family caregivers, provide resources, and to advocate for supportive policies and programs.

There are many issues that family caregivers.... Read More

             

Caregivers Need Support for their Diverse Needs

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by Scott Bane, Program Officer, The John A. Hartford Foundation. This article originally appeared on The John A. Hartford Foundation’s “What We’re Learning” blog.

Dear Colleagues—

Family caregivers provide an estimated $470 billion in unpaid care each year. All family caregivers need more support, but the diverse needs of family caregivers have not been fully appreciated. Thanks to research supported by The John A. Hartford Foundation, we’re learning a lot more about the diversity of family caregivers in this country and how we can better support them.

Family caregivers are represented in all races, ethnicities, ages, sexualities, gender.... Read More

             

2020 Census Overlooks Caregivers

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by Kayla Sawyer. This article originally appeared on the NICOA blog.

The 2020 Census fails to ask two important questions that affect more than 43.5 million Americans. The missing questions address whether a U.S. resident is a caregiver for an adult family member or a disabled child and whether a resident is receiving care from a family member.

Although the 2020 Census does include questions about grandparents caring for their grandchildren (up to age 18) in their homes, there’s no Census Bureau on family caregiving. According to estimates.... Read More

             

Moving Mountains for Family Caregivers in Southeast Asian American Communities

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An event hosted by the Southeast Asia Resource Action Center (SEARAC) is always sure to be filled with thoughtful, inspirational, and powerful moments, but none as powerful as the Diverse Elders Coalition’s family caregiving presentation at this year’s Moving Mountains Equity Summit in Sacramento, CA. I was thrilled to be able to share some of the preliminary findings of our family caregiving research, which has been generously supported by The John A. Hartford Foundation. After months of collecting surveys and conducting focus groups, it was exciting and satisfying to be able to share the results of our work with an audience of people most impacted by the programs and policies that will.... Read More

             

The Service Partnering With Churches to Help Family Caregivers

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by Melba Newsome. This article originally appeared on Next Avenue.

When Altrice Ward’s 82-year-old mother was hospitalized after falling for the third or fourth time, Ward knew she had to face an uncomfortable reality: Her mother could no longer live on her own.

So, despite holding down a full-time nursing job, Ward decided to move her mother in with her and take on the role of caregiver. Even her professional training caring for others did not prepare her for what lay ahead.

“It was eye-opening and more difficult and exhausting than I imagined it would.... Read More

             
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