Fund more Alzheimer’s studies, a high black risk (Black History Month)

In honor of Black History Month, the Diverse Elders Coalition is featuring stories relevant to black aging during February. A new story will be shared every Wednesday, with additional posts shared throughout the month. Be sure to visit diverseelders.org regularly during the month of February.

This article by Lewis W. Diuguid (ldiuguid@kcstar.com) originally appeared in The Kansas City Star

Since my mother died of Alzheimer’s disease in 1994, I always wondered as I attended fundraisers and events for caregivers why so many African Americans filled the rooms.

A recent study by John Hopkins University helps explain it. It shows that older African Americans are two to three times more likely to have Alzheimer’s disease compared with whites. That’s a new Black History Month concern for young African Americans and their elders whom new generations depend on for wisdom and advice.

Alzheimer’s is the sixth leading cause of death for all Americans, and the fourth leading cause of death for older African Americans age 85 and older, the study notes. The African American Network Against Alzheimer’s calls the disease “an unappreciated disparities issue,” adding that Alzheimer’s in general should “create a sense of urgency among policymakers to deal with this growing problem.” Keep in mind that African Americans are 13.6 percent of the U.S. population, but more than 20 percent of Americans with the disease are black.

There is no known cause or cure for Alzheimer’s. However, the study notes strong correlations between Alzheimer’s disease and the high incidence of hypertension, diabetes, strokes and heart disease among African Americans.

For the full article, which originally appeared in The Kansas City Star click here

The opinions expressed in this article are those of the author and do not necessarily reflect those of the Diverse Elders Coalition.

READ OUR OTHER BLACK HISTORY MONTH STORIES:

On the Shoulders of our Black Elders: Powerful Images from our Past (Black History Month: Civil Rights in America)

You won’t believe what I learned from our black elders (Black History Month)

10 things Black Americans should know about HIV/AIDS (Black History Month)

35 quotes to help guide your life from famous African American older adults (Black History Month)

When the Healer is not Healed – The Pain of Losing a Child in Your Later Years (Black History Month)

Fighting the Good Fight Against Isolation

As we advance in life it becomes more and more difficult, but in fighting the difficulties the inmost strength of the heart is developed. Vincent van Gogh

W., 66, a former journalist and man about town, entered the meeting on LGBT issues a little late and his gait was slower than usual. When the meeting ended, he asked for a ride to the subway. As we rode, he talked about why he was late: not knowing the bus routes for this part of the city, the bus being late and the neighborhood being less than desirable. He hadn’t been feeling well and almost didn’t come to the meeting. It occurred to me that this African American elder continues to “fight the good fight” to beat the isolation that can plague us as we age and attended the meeting anyway.

Isolation is one of the great robbers of an enriched quality of life for older adults across the spectrum of race/ethnicity, class, religion, national origin, familial status, disability, gender identity, or sexual orientation. Self-imposed isolation related to aging can include an unwillingness or inability to drive, limited transportation options, chronic ailments and disabilities, lack of events for their peer group, the lack of compatriots and a youth oriented culture. Read More Read More

Deportation: A Human Rights Issue

Deporting Americans: A Community United Against Deportations

A couple of weeks ago, I posted a piece entitled “Caught in the Deportation Machine …” about how deportation affects elders – both those who are detained and deported, and those who suffer trauma from losing children or grandchildren. This photo montage, “Deporting Americans,” was created in Philadelphia by 1Love Movement when the tight Cambodian American community in that city was hit by a deportation crisis. Dozens of Cambodian folks with green cards, including Chally Dang and Mout Iv, were suddenly rounded up because of old convictions. Many had been rebuilding their lives for years after making the mistakes that had originally made them deportable. Many left behind U.S. citizen children, parents, and grandparents. Entire neighborhoods were devastated. Read More Read More

Webinar Recording: Why the Affordable Care Act Matters to Diverse Older People

The health coverage expansions under the Affordable Care Act (ACA) will affect you, your loved ones and your communities. The Diverse Elders Coalition represents millions of diverse older people age 50+ who are among those affected: they include the Health Insurance Marketplace, the Medicaid expansion, new benefits for elders 65+ on Medicare, and a range of protections that make health care more accessible for lesbian, gay, bisexual and transgender (LGBT) older people and older people of color. The number of uninsured older adults age 50-64 continues to rise—from 3.7 million in 2000 to 8.9 million in 2010. In addition, people of color make up more than half of uninsured people in the U.S.— and research shows that people of color, across the age span, face significant disparities in physical and mental health. Additionally, many people of color delay care because of potential medical costs and out of fear of discrimination or cultural incompetence from medical providers. This webinar highlights both national and state-specific examples on what is being done to ensure that older people know about the changes that are taking place under the ACA and how it affects them.

Speakers: Yanira Cruz, President and CEO, National Hispanic Council on Aging; Michael Adams, Executive Director, Services and Advocacy for GLBT Elders (SAGE). Special thanks to our co-sponsors, The John A. Hartford Foundation and The California Wellness Foundation.

Original Webinar date: Wednesday, November 6, 2013.

Watch it at http://www.screencast.com/t/yzeTQbgEze2.

Caught in the Deportation Machine: Elders, Family Separation, and Immigration Reform

This year, the Obama administration will surpass the 2 million mark – this is, it will have deported 2 million people since 2008, more than any other administration in history. The largest numbers of people being deported are those without legal status, but many Green card holders are also among the 2 million deportees. Since 1998, over 13,000 Southeast Asians (from Cambodia, Laos, and Vietnam) have been deported, including many Green card holders who arrived in the U.S. decades ago as refugees fleeing war and genocide. The majority of those deported are under the age of 35, but many elders also get caught in the deportation machine. Even more elders who remain in the U.S. suffer emotionally and financially when their adult children are taken away.

Despite official Immigration and Customs Enforcement (ICE) guidance that agents should not “expend detention resources” on those who are elderly, many immigrant elders are detained and deported. According to information gathered through a Freedom of Information Act (FOIA) request by the NYU School of Law Immigrant Rights Clinic, the Immigrant Defense Project, and Families for Freedom, between 2005 and 2010 the New York City ICE Field Office apprehended 1,275 noncitizens over the age of 55, and of these, at least 141 were subject to mandatory detention. Seniors struggle more than most in detention – they are more likely to be Limited English Proficient, and are more likely to suffer from health problems and dementia.

Huyen Thi Nguyen, an elderly Vietnamese woman, was detained in an immigration detention center for 16 months after serving her sentence for cash-for-food stamp fraud. She continues to fight her deportation, while suffering from mild dementia. Claudette Hubbard escaped LGBT violence in Jamaica in 1973 and became a U.S. Green card holder. She has been detained by ICE for over two years because of a 20-year-old conviction from a drug charge, even though she has fully rehabilitated and is mother and grandmother to U.S. citizens.

Claudette Hubbard with her U.S. citizen daughter and granddaughters

Claudette Hubbard with her U.S. citizen daughter and granddaughters

Read More Read More

Our Issues Entwine: LGBTQ Aging and Economic Justice

MY IMMIGRANT MOTHER sits silently in a room the size of a small kitchen. Earlier this year, she survived multiple failures of the heart, kidneys, and limbs over the course of six weeks. She is seventy-three, uses a wheelchair, and for the first time in her life is surrounded by white people who do not speak Spanish, in the only nearby nursing home my parents can afford. In turn, my father drives through the days confronted by three omnipresent realities: hour-long daily visits with my mother, a night shift to keep him mentally and financially afloat, and a mailbox flooded with health care bills, insurance disputes and the complexity of navigating Medicare, Medicaid, and private insurers. When I speak of health reform, queer rights, or racial and economic justice, he gazes at me solemnly. He survived a lifetime of racial discrimination, fought in two wars and lived through the ensuing decades with a cacophony in his psyche. At seventy-eight, nearly blind and deaf, he will hear nothing of systems and reform. More often than not, these days we sit in silence.

This silence haunts me as an advocate who works at the intersection of aging and lesbian, gay, bisexual, transgender, and queer (LGBTQ) rights. The aging and LGBTQ advocacy fields often propose policy solutions that are too narrow to address the complexity of how all marginalized people — including heterosexual people of color such as my parents, members of the LGBTQ community, and more — experience the process of aging. We need social transformations that address the intersecting forms of oppression that older people face — and that can make sense of the chaos and silence that shroud my parents. This has become especially clear to me through my work as the director of a national policy program devoted to improving the health and well-being of LGBTQ older people.

A closer look at the lives of aging LGBTQ people reveals how deeply identity politics and class politics are entangled. Here, an older protester rallies for marriage equality in Pasadena, California.

A closer look at the lives of aging LGBTQ people reveals how deeply identity politics and class politics are entangled. Here, an older protester rallies for marriage equality in Pasadena, California.

For the full essay, which originally appeared in Tikkun Magazine click here

Not All Asians Are the Same: Diversity within the AAPI Older Adult Population

When our nation talks about Asian Americans, it often groups together people from different cultures and those who speak different languages. Someone from China faces different challenges than a refugee from Cambodia, yet research typically wouldn’t show this. As a group, Asian Americans and Pacific Islanders (AAPIs) are the fastest growing population in the United States. Despite the large and rapidly growing population, research and data on AAPI elders is limited and often presented in aggregate (i.e. grouped together). Aggregate data belies the diversity and the challenges faced within the AAPI older adult population.

The National Asian Pacific Center on Aging (NAPCA) recently published five reports that paint a fuller and more accurate picture of the challenges many APPI older adults face. The reports divide the population into three groups (aged 55 & older, aged 55-64, and aged 65 & older) and highlight the language, economic, and employment characteristics of AAPI elders. NAPCA used publically available sources from various government agencies, and disaggregated (or separated) the data to better depict the realities of the AAPI older adult population (55+). See an example below.

Percent Below Poverty Level

Source: U.S. Census Bureau, 2006-2010 American Community Survey, 5-Year Estimates

Demystifying the “Model Minority” Stereotype Read More Read More

Open Letter to Health Reform Advocates: Pay Attention to Discrimination

The harms inflicted by discrimination reveal themselves in our bodies as we age — as people of color, as poor and low-income people, and as lesbian, gay, bisexual and transgender (LGBT) people. The symptoms manifest as higher rates of high blood pressure, cholesterol, diabetes, heart disease, HIV/AIDS, depression, social isolation and more. In medical charts throughout the country, our bodies record what it means to survive a life shaped by perpetual poverty, higher concentrations in low-wage jobs with no health insurance, thin retirement options and inadequate protections in the workplace. They depict our fractured relationships to health care — from cultural and linguistic barriers to overt bias and discrimination from health and aging providers, to a long-held, hard-earned distrust of medical staff internalized through years of differential treatment.

Our bodies confirm vividly the geographic dimensions of structural inequality, which can predict long-term health as early as childhood, based largely on where a person is born. We inhale the poison of inequality throughout our lives, and it inflames in our later years as a dismal diagnosis, a medical crisis or a preventable death. Yes, severe illness will surprise many of us at some point in our lives, and death is indiscriminate, but as empirical fact, poor health affects certain demographics disproportionately at earlier and higher rates, often the same people with no health coverage to manage the repercussions.

Oct. 1 aims to begin reversing these conditions. The health insurance marketplace established through the Affordable Care Act (ACA) offers opportunities to shop for state health insurance plans and begins improving coverage for the 47 million uninsured people in this country. Millions of people work in jobs with no health coverage, cannot afford insurance on their own and fall through gaps in public support that leave them uninsured or underinsured. Without insurance, people accrue unmanageable debt, delay health care and in turn watch their health worsen over time — a trajectory most often experienced by people of color, LGBT people and low-income people. These hardships intensify for older people who must also contend with age-related bias in the workplace and the challenges of paying for out-of-pocket expenses with meager incomes. An all-inclusive vision of health reform must incorporate the realities of aging as early as age 50. Read More Read More

Language, Idioma, 語, ភាសា: Speaking limited English can pose unique challenges for older people

Map of people that speak Spanish at home.  Source: Badger, Emily, “Where 60 Million People in the U.S. Don’t Speak English at Home,” The Atlantic Cities

Map of people that speak Spanish at home. Source: Badger, Emily, “Where 60 Million People in the U.S. Don’t Speak English at Home,” The Atlantic Cities

According to the Census Bureau, about 20% of people speak a language other than English at home. That’s 1 in 5 people! And over the years, this number has only grown. The Census Bureau has developed a map that shows in which parts of the country these people live. What the map shows is that there are people whose preferred language is not English in all but the most sparsely populated parts of the country. Language access is a civil right, and these rights are reflected in federal law. It is also becoming more common to see instructions on packages, advertisements, and other messages translated into languages other than English, as well. When it comes to language access, the policies of the United States promote inclusion.

Despite these efforts at inclusion, accessing many government programs poses unique challenges for older adults with limited English speaking ability. Programs like Medicare Part D (the prescription medication program) and the Affordable Care Act’s health exchanges rely on consumers to choose the plans that will balance value and health coverage. However, there are multiple studies from the implementation of Medicare Part D that state consumers do not choose the most economically efficient options. Most people, particularly those who prefer to speak in a language other than English, could benefit from learning more about their health care options. Read More Read More

LGBT Elders: Poverty’s Challenges Worsen With Age

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At 81, George Stewart has been a longtime advocate for lesbian, gay, bisexual and transgender (LGBT) older people in New York City. He’s a former Army clerk and U.S. Air Force court reporter, and last summer he was selected by the White House as one of six Champions of Change nationwide for LGBT Pride Month. Yet behind his active civic life and national profile lies another reality: George Stewart is low income, and as with millions of older people, he relies on federal assistance to supplement his income and on local services for community support. For many low-income LGBT older people, public assistance and support networks interlock as lifelines — ameliorating poverty, reducing isolation and helping to manage the slew of challenges that come with getting older. Unfortunately, despite the prevalence of poverty among elders in this country, including LGBT elders, these realities are rarely brought to light. Read More Read More

Five Reflections on Advocacy with Southeast Asian American Elders

“Will immigration reform help me reunite with my grandchildren?”

 “My husband passed from cancer I wish there were more support services.”

 “We want to take care of our family in harmony.”

An elder at Cannon House Office Building

An elder at Cannon House Office Building

On Tuesday, March 26, 2013, 60 youth and elders spoke up with these comments and questions. SEARAC, alongside the Cambodian Association of Greater Philadelphia, held an advocacy day where the group met with the White House Initiative on Asian Americans and Pacific Islanders, the federal agencies, and Congressional offices in Washington, DC.

It was incredibly inspiring this week to see elders speaking up, with local impact through the group of Cambodian-American elders we hosted, as well national as I followed coverage of the Supreme Court arguments on United States v. Windsor. Check out our fellow DEC partner SAGE’s blog for more great insights on the issue and more about Edie’s own amazing story.

The week isn’t even over yet, but I wanted to contribute five reflections on advocacy with Southeast Asian American elders: Read More Read More

The Re-launch is here!

Two weeks ago, we announced that we would be re-launching the Diverse Elders Coalition Blog.  Read here to find out more.

We are thrilled that this day has finally come. As we previously promised, in addition to our regular contributing bloggers, we will have exciting guest bloggers.  We will also display our content in a variety of different ways (e.g., pictures, videos, interviews, Top 5 columns, etc.) And much more! Have a suggestion? Contact us.

You can bookmark this page or subscribe to our RSS feed to stay updated. Check back on Wednesday to read our latest post, courtesy of National Hispanic Council on Aging (NHCOA). Until then, enjoy some highlights from the blog’s history:

1) Watch Our Story

2) The Unique Needs of Asian American and Pacific Islander Elders

3) 10 Considerations for Working with the Diversity of Older LGBT Latinos

We are Re-launching On March 18!

Share on Facebook and Twitter

Share on Facebook and Twitter

The Diverse Elders Coalition (DEC) was founded in 2010, and in July 2012 we launched our official website, which also serves as a news and commentary blog on the social, political and economic issues affecting the growing yet vulnerable demographic of elders who are Black, Hispanic, Asian/Pacific Islander, American Indian/Alaska Native, and lesbian, gay, bisexual and/or transgender (LGBT).In the last eight months, we have put out numerous posts on the issues that affect our communities and the creative ideas and best practices to address them. In the summer of 2012, we also released Securing Our Future: Advancing Economic Security for Diverse Elders, a resource that describes the issues facing elders of color and LGBT elders, who together will represent a majority of older adults in the United States by 2050.

In this time, we have received some wonderful comments on our work, as well as helpful feedback from our readers (all of you) on how to improve the site to better meet your needs—and we listened to you. Members of the Diverse Elders Coalition came together and crafted an exciting plan for moving forward by implementing many of your ideas, which you’ll see starting with our blog re-launch on March 18.  Here are some of the improvements to look forward to:

  • In addition to our regular contributing bloggers, we have some exciting guest bloggers scheduled!
  • Content displayed in a variety of ways (e.g., pictures, videos, interviews, Top 5 columns, etc.)
  • More news and original content from coalition members
  • And more!

 

As we look forward to March 18, please like us (and tell a friend!) on Facebook to stay updated on the events surrounding the launch and the latest news affecting diverse elders. If you have any questions about DEC or would like to submit an idea for a blog post, please contact us.

See you on the 18th!

To learn more about DEC members, click here.

LGBT Older Americans Cannot Afford to Go Over the Fiscal Cliff

The following is a guest post by George Stewart, SAGE constituent.

Not long ago, the Washington Post reprinted a letter signed by a group of lesbian, gay, bisexual and transgender (LGBT) millionaires asking Congress to come to a resolution on the “fiscal cliff” by preventing across-the-board spending cuts to federal programs, preserving tax cuts for the middle class and allowing tax cuts for the wealthiest to expire.  As heartened as I was to see some LGBT voices in the public debate on economic issues, I wondered how many people know how the impending spending cuts will impact a vast majority of LGBT older people throughout the country—people like me.

I have spent much of my life looking for where I fit in, while striving to serve my country and my community. I’ve witnessed intolerance in my life, as well as positive change. In the 1950s, I was a black soldier in a segregated Army unit stationed in the South. I found a lot of camaraderie with the soldiers in my unit, but we always felt that we had to go above and beyond—if another outfit shined the tops of their shoes, we’d shine the bottom of ours. I was stationed last in Louisiana, where one of my most vivid memories is being singled out by a policeman because he thought I was sitting too close to a white woman in a public park. When my enlistment ended in Louisiana, I decided that I would move to New York City.  I hoped my move would lead to better things—an opportunity to be an individual in a big city, instead of being viewed as just a black man inappropriately sitting down next to a white woman. Read More Read More